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Monday, 25 March 2019

Are you using a digital mental health intervention?

If you are currently using a digital mental health intervention, such as via a phone, the internet, or another electronic device, you can help further research by taking part in a short 20-30 minute survey.

About the study:
Digital interventions for mental health are those that are delivered via electronic means, such as with mobile phone Apps, programs delivered over the internet, or chat, telephone, or videoconference counselling. These may be structured interventions for a particular problem (e.g. anxiety or depression) or they may also help you with developing a particular skill (e.g. mindfulness or meditation). In this study you will be asked to complete an online questionnaire regarding your current use of a digital mental health intervention, including your beliefs regarding the intervention. You will also be asked to read three short passages. You will then be asked to re-complete the same questionnaire one week later, in order to examine the pattern of use of digital mental health interventions.

Benefits of this research:
Participation in this research will help us to understand individuals' perceptions and use of digital mental health interventions, in order to best tailor and improve these services and interventions.

Prize Draw:
After you have completed the follow-up questionnaire you will be offered the opportunity to enter a prize draw for one of three $100 Coles/Myer vouchers.
If you are willing to participate in the research, please access the link below.

https://prodsurvey.rcs.griffith.edu.au/prodls200/index.php/survey/index/sid/768594/newtest/Y/lang/en 

Please note you must be at least 18-years-old to participate.

If you have any questions or concerns, please feel free to contact the research team.
•Chief Investigator: Dr Bonnie Clough. Ph: (07) 567 88101. Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 
•Chief Investigator: Dr Leanne Casey. Ph: (07) 373 53314. Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 
•Student Researcher: Ms Sophia Stillerova. Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
•Student Researcher: Ms Christina Yousif. Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Griffith University Human Research Ethics reference number: 2018/899

Tuesday, 05 March 2019

Participants required for research into the neurobiological mechanisms involved in anorexia nervosa. Right-handed females with a current diagnosis of Anorexia Nervosa OR right-handed biological sisters of individuals with Anorexia Nervosa, are required to take part in sessions at Swinburne Uni (Hawthorn). These sessions will involve a set of neuropsychological tests and MRI scans. Participants with anorexia nervosa will be required to take part in 2 sessions; biological sisters of individuals with anorexia nervosa will be required to take part in 1 session. Each session is approx 2-3 hours. Participants will be reimbursed with a total of $70 for 2 sessions, or $40 for one session.

Click here to participate. 

 

 

Wednesday, 20 February 2019

20 February 2019

There has been significant media attention and subsequent concerns within our community in relation to the Fast Track research trial being undertaken by the Sydney Children’s Hospital Network (The Children’s Hospital at Westmead) and Monash Children’s Hospital in Melbourne. We would like to express that we share these concerns and have been working to determine the best course of action.

The Australia & New Zealand Academy for Eating Disorders (ANZAED), Eating Disorders Victoria (EDV), Eating Disorders Queensland (EDQ), and the Butterfly Foundation have taken the time to deliberate carefully, hear the concerns of our community, obtain further information and provide a considered combined response.

We agree that there are strong concerns about the safety of the young people involved in the trial. Eating disorders have the highest mortality rate of any mental illness, with onset common during adolescence.

Research investigators within this trial have indicated that there is evidence that modified alternate day fasting has achieved weight loss in adults; however we believe that there is a lack of evidence that this is sustained long term. We are concerned that an approach that has not yet shown long-term sustainability in adults is being trialled in a vulnerable adolescent population at greatest risk of developing an eating disorder.

A complaint was made to the Sydney Children’s Hospital Network Human Research Ethics Committee last year by a group of 29 eating disorder professionals, asking for an urgent review of the study. An independent ethics review was undertaken at this time and the ethical review requested additional safeguards.

We understand that the researchers have updated the participant and parent information sheet to indicate that there may be a minimal risk of increased eating disorders from engagement in restrictive dieting.

Eating disorders are complex neuropsychiatric illnesses with severe mental and physical implications. Given such, we still have concerns and believe further action is required.

In discussion with the principal researchers involved in the trial, we have requested the following:

  • The risks of developing an eating disorder are clearly stated in the participant and parent information sheets, and on the trial website;
  • Additional psychological support for participants throughout the trial;
  • Additional screening for anxiety and distress at key points during the trial;
  • Specific training in Eating Disorders for all clinicians involved with participants.

As representatives of the eating disorder sector, we would like to thank our community and members for raising these concerns. We have expressed our concerns to the trial’s investigators and will continue to update you on responses and actions taken.

ANZAED, Butterfly Foundation, EDV, EDQ

-ends-

DOWNLOAD JOINT STATEMENT

If any discussion around this trial has raised any concerns for you, please give our Helpline a call on 1300 550 236, or send us an email at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

Friday, 15 March 2019

Swinburne University of Technology

Disordered eating and eating disorders are psychological conditions that impact many people in different ways. Disordered eating commonly occurs in the presence of other difficulties such as anxiety, depression, low self-esteem and perfectionism. Some people also report a traumatic event(s) as pivotal in the development of their problems with food. Useful evidence-based treatments are available to help people recover from disordered eating, however many people do not seek help and when they do, it can take time to create enduring positive change.

Past research has identified a relationship between disordered eating and other factors such as a past history of trauma and other psychological factors e.g. anxiety, perfectionism, low self-esteem. What is not clear however, is how these other factors impact on disordered eating thoughts, feelings and behaviours. This study aims to explore the interrelationship between disordered eating and other factors that have been reported to be relevant in the literature.

The information gathered in this study will be used to improve our understanding of how these factors impact on each other. A better understanding of the underlying factors involved will inform future efforts to treat and prevent the related disorders.

For more information and to participate, please see here.

Thursday, 21 February 2019

About the research trial
We are doing a research study to determine how new and emerging technologies can be used to support individuals with eating disorders, disordered eating, body image and related issues. Specifically, we want to know how technology-enabled solutions (i.e. the Platform) should be tailored to enhance the clinical services provided by Butterfly’s National Helpline. This research has been funded by the Australian Government Department of Health. You will be asked to participate in a group workshop (either face-to-face or online) to create and test design solutions to ensure that the Platform is built to meet the needs of The Butterfly Foundation’s community.

Recruitment details
Individuals (aged 15 years or over and proficient in English) associated with The Butterfly Foundation community, including: individuals (with a lived experience of eating and/or body image related issues); supportive others (carer, family, friend); and related health professionals, service managers and administrators.

Contact
This email address is being protected from spambots. You need JavaScript enabled to view it. 

 

butterfly community recruitment poster 1

Tuesday, 29 January 2019

Thank you to those who contributed to the EDV submssion to the Royal Commission into Mental Health Terms of Reference. 

We have now submitted our response to the Victorian Government regarding the Terms of Reference.

In summary, EDV would like to see the Royal Commission recommend holistic, structured and integrated reform across the mental health and medical health systems so that a thorough continuum of care is established for people experiencing eating disorders in Victoria.

Key to achieving this outcome will be:

  • Investment in more eating disorder specific services across all of Victoria
  • Investment in community mental health organisations that support individuals and families affected by eating disorders, particularly in step up/step down services.
  • Established, unified structure around pathways for help-seeking
  • Reviewed eligibility criteria for treatment services that is more inclusive, both geographically and medically.
  • Education/training of front line health workers that is eating disorder specific.
  • The inclusion of families as an integral part of treatment, rather than an additional/optional support.

 

You can read EDV's full response here.

The Royal Commission provides a significant opportunity for EDV to elevate the issues related to eating disorders, and place them on public record. Therefore, we encourage you to participate in the process as it unfolds over the next year or so. EDV will be encouraging people to speak directly to the Commission and can provide support to do so. We will also be making submissions on behalf of the collective experience where appropriate.

 

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