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Tuesday, 23 April 2019

 

Why share your story?

Stories of Recovery provide much needed hope to people affected by eating disorders. They prove that recovery from an eating disorder is possible, and highlight the diverse journeys people take to get there. Sharing your story also gives you a chance to reflect on your own experience, and may help you find acceptance or peace within your own journey.

Who can share their story?

  • Individuals who have recovered from an eating disorder
  • Anyone who has been close to someone who has recovered from an eating disorder (parents, siblings, partners, friends, grandparents etc.)

We know that everyone’s experience of an eating disorder is unique and no two stories are the same. We encourage a broad and diverse range of stories, from both individuals who have recovered, and those who have supported them along the way.

Where will stories be published?

Recovery stories will be published on the EDV website. If we’re interested in using your story for another EDV publication, we will contact you for your permission.

Things to think about

It’s important your story remains recovery focused. Take some time to reflect on the following questions.

  • Do I feel ready to write my story? If yes, do I have supports in place in case I need them?
  • Is what I’m writing helpful for the reader? How am I making them feel?
  • What is the message I want to leave the reader with?

 
Guidelines

  • Do not use specifics in your story as they can potentially be triggering for the reader. For example, no numbers or descriptive behaviours. Please do not name specific service providers.
  • Create a short, meaningful title so readers can identify the particular subject areas that interest them. 
  • Let us know how you would like to be acknowledged. We will include a “contributed by x” at the end of your story, however if you would rather not use your first name, you can suggest an alias or pseudonym that you prefer.
  • Word limit: aim for 500 to 700 words. However, if you want to write more, the upper limit is 1,200 words.


Ready to share?

Please email your story to This email address is being protected from spambots. You need JavaScript enabled to view it.  with the title of your story in the subject heading.


Review process

All stories will be reviewed before being published. Slight changes may be made for editorial purposes. EDV also reserve the right not to publish stories that do not fit the guidelines. If at any stage you would like your story removed, please don’t hesitate to get in contact with us.


Support

If you would like to speak to someone during this process, please contact us on 1300 550 236 or email This email address is being protected from spambots. You need JavaScript enabled to view it.. For crisis support, please contact Lifeline on 13 11 14. 

Tuesday, 09 April 2019

April 9th 2019

 

Victorian Government to fund EDV’s Peer Mentoring Program for another year

Eating Disorders Victoria are thrilled to announce that the Minister for Mental Health, Martin Foley MP, has advised that the Victorian Government will fund EDV’s Peer Mentoring Program in 2019/20.

The Peer Mentoring Program began as a pilot in 2016 through philanthropic investment, with the Victorian Government contributing additional funds to the program in 2017/18. In the almost three years since the program commenced, it has proven to reduce hospital re-admission rates, and is projected to have significant cost benefits to the public health system. For every $1 invested in the program, the government can expect to save $2.50 in future inpatient treatment spending.

EDV CEO Jennifer Beveridge said that after seven months of advocating, the investment from the Victorian Government is welcome news for EDV and the sector.

“This is an exciting step in the right direction for people with eating disorders. Not only will the program provide support for more people in the year ahead, we will also continue to collect data that demonstrates the value of community based care and support using a peer workforce.

EDV will use the opportunities afforded by the Royal Commission into Mental Health to continue to advocate for recurrent funding for this program.”

The Peer Mentoring Program is currently at capacity, with a new intake round now expected in July 2019.

About the Peer Mentoring Program:
The program is designed to address the high relapse rate for individuals who receive hospital treatment for eating disorders. The program provides a step down service for individuals when discharged for hospital, connecting them to a Peer Mentor who themselves has experienced and recovered from an eating disorder. The structured mentoring relationship continues for a period of six months, and aims to keep individuals actively engaged in their recovery journey and out of hospital.

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Tuesday, 02 April 2019

The federal Minister for Health Greg Hunt this morning announced $70.2 million to establish six residential eating disorder centres across Australia.

EDV CEO Jennifer Beveridge said the announcement was the culmination of years of advocacy from eating disorder organisations.

“We know that accessing treatment for eating disorders often comes down to postcode lottery. The state you live determines the type of treatment you have access to. Moving to a more equitable system of care through a coordinated, national approach such as this is a big step in the right direction.”

Two of the six residential centres have already been assigned to WA and the ACT respectively, with the other four locations yet to be announced. The Butterfly Foundation has been tasked with helping guide the establishment of the centres around Australia.

“We welcome the establishment of a residential eating disorder centre. We look forward to working with our colleagues at The Butterfly Foundation and other partners with the roll out of a centre here in Victoria.” Ms Beveridge said.

This latest announcement is in addition to the historic $110 million investment into the new MBS item numbers for eating disorders announced in December last year.

 

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Media contact:
Breanna Guterres
This email address is being protected from spambots. You need JavaScript enabled to view it.
0431 717 177

Tuesday, 16 April 2019

16th April 2019

 

Telehealth Nurse to be available on Eating Disorders Victoria Helpline

Eating Disorders Victoria (EDV) have been selected as one of 11 organisations Australia-wide to adapt and test a Telehealth Nurse pilot, known as the Patient Pathways Program.

The Patient Pathways Program is a 3-year Commonwealth funded initiative of the Centre for Community-Driven Research (CCDR).

EDV CEO Jennifer Beveridge said the addition of a telehealth nurse on the EDV Helpline will be of enormous benefit to Victorian’s affected by eating disorders, and will help bring eating disorder care more in line with other serious illnesses.

“We know that when you get diagnosed with certain types of cancer, you have access to a support nurse who can answer your questions and help guide you through the system. When people are diagnosed with eating disorders, they are often left to figure it out on their own.

A telehealth nurse will further expand on the navigation support already offered by EDV, helping Victorians access existing services as well as connecting them with opportunities to participate in medical research and patient feedback initiatives.”

Ms Beveridge also noted that the program highlights the vital role of community-based organisations.

“The first point of call for many people when they are diagnosed with a serious illness is their local non-profit organisation. This program acknowledges that community organisations need continued investment so that they can support the broader healthcare system.”

Recruitment for the EDV telehealth nurse will begin soon. EDV will join the following organisations in the 3-year Patient Pathways Program:

• MDDA - Metabolic Dietary Disorders Association
• Mito Foundation (Mitochondrial disease)
• Maddie Riewoldt's Vision (Bone Marrow Failure Syndromes)
• Crohn's & Colitis Australia
• Emerge Australia (Myalgic encephalomyelitis/Chronic Fatigue Syndrome)
• Tuberous Sclerosis Australia
• Save Our Sons Duchennes (Duchenne and Becker Muscular Dystrophy)
• Genetic Alliance Australia
• Cerebral Palsy Support Network
• Pancare (Pancreatic cancer)

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For further information, please contact 1300 550 236 or email This email address is being protected from spambots. You need JavaScript enabled to view it. 

Thursday, 04 April 2019

EDV are here to support anyone wanting to engage in the Royal Commission into Victoria's Mental Health System.

We understand that sharing your experience with the eating disorder service system may feel overwhelming, for many reasons. Putting together the words to describe what will often be a long, complicated and deeply personal story is understandably challenging.

If you would like speak to someone about how you can share your experience with the eating disorder service system, please contact us on 1300 550 236, or email us at This email address is being protected from spambots. You need JavaScript enabled to view it. 

How can you engage in the Royal Commission with the support of EDV?

  1. Community Consultations, April 5th - May 22nd 2019
    A representative from EDV will be attending the vast majority of the Community Consultation sessions. 
    If you are wanting to attend a session but don’t want to go alone, please reach out to us so that someone from EDV can connect with you there. Likewise, we encourage you to attend with a friend or a family member if you would like some extra support.

    To find a Community Consultation Session near you, please see the Royal Commission website. 
    To let EDV know you're attending a Community Consultation Session, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. 

    Consultation questions
    The Commission is asking people in your community to address the following questions:

    1. Reflecting on mental health services, what do you think works well?
    • What kind of service (e.g.) hospital stay, community-based support?
    • Was it a metro, regional or rural setting?

    2. Reflecting on mental health services, what do you think does not work well?
    • What kind of service (e.g.) hospital stay, community-based support)?
    • Was it a metro, regional or rural setting?

    3. What needs to change to improve Victoria’s mental health services?

    4. Is there anything else important that you came here to talk about today, that you did not get a chance to say and want to share?

  2. Share your experience and suggestions, April 2019

    EDV will be holding weekly writing workshops / support sessions for anyone who needs support articulating their story.
    Submissions can be made in writing, online, audio and video.

    Session times and dates:

    Thursday April 11th 2019, 2pm-4pm 
    Other sessions TBA. 

    Please send us an email if you are planning to attend: This email address is being protected from spambots. You need JavaScript enabled to view it. 

  3. Call for submissions to the Commission's terms of reference, from April 2019
    TBA

  4. Online discussion forums, mid 2019
    TBA

  5. Surveys, mid 2019
    TBA

  6. Hearings, from June to July 2019
    TBA

 

For more information regarding the Royal Commission into Victoria's Mental Health System, please see the official website at www.rcvmhs.vic.gov.au 

Read EDV's submission on the Royal Commission into Victoria's Mental Health System Terms of Reference. 

 

Wednesday, 27 March 2019

Looking for Victorian parents!

Would you like to share your perspective as a parent on online parenting resources, and help improve young peoples' mental health?

Monash University's Parenting and Youth Mental Health lab is looking for Victorian parents who may experience financial barriers in utilising traditional mental health services to participate in a 1-hour interview about creating web-based programs to help parents build their child's resilience and mental health.

To thank you for your time you will receive a $20 Coles gift card.

To find out more about the Programs Empowering Parents (PEP) study please see the attached image. If interested, please email Grace Broomfield at This email address is being protected from spambots. You need JavaScript enabled to view it. or call (03) 9902 0040. You can also support the project by sharing this information and the below image. 

pep study i participant flyerpage001

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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